|Jun 2021||Living with Multiple Myeloma – Diet and Multiple myeloma||
In her engaging conversation with Maire Treasa, Ruth Kilcawley Senior Nutritional Support Dietitian at University College Hospital, Galway describes the impact of what we eat on our physical health. Ruth outlines the role of good diet and nutrition in managing cancer, reducing infections and improving Multiple Myeloma patients quality of life. Ruth stresses the importance of maintaining strength whilst undergoing treatment. She shares advice on how to balance and manage food intake. Ruth explains the importance of food variety, mixed food colours and choosing safe foods to maximise nutrition in cancer and in living with multiple myeloma. Ruth also outlines the role of the dietitian in assessment of patients nutritional status and explains the role of dietary counselling techniques to address some of the issues Multiple Myeloma patients experience during their treatment. She provides excellent tips and advice on how to overcome challenges with taste and smell which will assist patients better tolerate treatment. She emphasises how eating regularly, fuels the body. In addition, she discusses the role of nutritional supplements and cautions on the risk of overuse of supplements. Moreover, she highlights the importance of getting the balance right, we all deserve the occasional treats once in moderation! Finally, Ruth provides advice on managing sources of information and where to seek evidence based advice on a balanced, nutritional, safe diet for cancer patients. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.
|May 2021||Living with relapsed/refractory Multiple Myeloma||
In this podcast, Dr Denis O’Keeffe, Consultant Hematologist explains that Multiple Myeloma will in the majority of patients come back, however today many options for treating and controlling the relapsed/refractory disease exists and patients survival has greatly improved. Dr O’Keeffe is keen to point out patients cannot stop Multiple Myeloma from coming back but it is important to maintain a healthy lifestyle. Dr O’Keeffe advises early recognition of the disease relapse is possible due to close monitoring and before the disease can cause damage. Not all patients require treatment at relapse and the decision to treat or not is individualized and made in partnership with patients. The decision to treat is based on the patients individual disease, age, physical and mental health and the additional challenge of Covid risk. Dr O Keeffe highlights that at relapse patients are better equipped to cope and that through the difficult times there is great hope. Treatment options are increasing all the time moving towards the possibility of cure. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.
|May 2021||Living with Multiple Myeloma- Living with relapsed Multiple Myeloma- Ann’s patient journey||
In this podcast, Ann shares her personal experience of living with Multiple Myeloma for over 5 years. Although, her multiple myeloma has relapsed more than once and requires ongoing treatment, she is living well and is hopeful for the future. Ann’ s engaging conversation with Maire Tresa provides advice on the importance of taking control of your life, being active and surrounding yourself with supportive people when coping with this relapsing, remitting cancer. She describes how learning to adjust her mindset and adapting her activities has helped her learn to live with relapsed disease. Ann outlines how being more self aware and drawing on her inner reserves has helped her overcome the fear and disappointment of her Multiple Myeloma relapse and subsequent treatment. Ann describes honestly how she has adapted to life from ‘living from blood test to blood test’ to learning to live and manage her disease both physically and emotionally. Throughout this podcast her positive attitude and drive is moving and inspiring. Ann shares important advice for patients living with Multiple myeloma, including staying informed, being aware of your limitations, seeking support for symptoms or side effects adjusting activities and setting goals. Ann highlights the importance of support groups for sharing advice and information. In addition she encourages others through her personal experience to savour the small and simple things in life and to remain hopeful for the future. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.
|May 2021||An essential guide to Autologous stem cell transplantation (ASCT) in Multiple Myeloma||
In this podcast, Nurse Liz Higgins, Transplant Co-Ordinator at St James Hospital, Dublin provides a detailed account of the autologous stem cell transplant patient pathway. Liz explains the role of stem cells, how stem cells are harvested and later given back to a patient following high dose chemotherapy. Although, not curative, ASCT aims to treat Multiple Myeloma, prolong disease control and improve overall survival. Liz summaries the eligibility criteria and assessment process required prior to undergoing a ASCT. Liz clearly outlines the role of the multidisciplinary team in supporting patients through the transplant journey. This treatment is associated with many side effects however these can be very well managed. Reporting symptoms early is important. Finally Liz, clearly outlines the patients recovery period following a ASCT. This is an essential guide for patients, families and carers where ASCT is considered as part of their Multiple Myeloma treatment plan. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.
Support Group meeting information dates for May 2021 now updated. Confirmation of Dublin & Wexford meetings in June also updated
With the help of “Just Giving” Platform – MMI offers you the opportunity to fundraise on behalf of us. This automated platform puts you in control and allows to setup multiple types of events to raise funds on our behalf.
MMI Vision – MMI recognise everyone’s experience of myeloma is unique – our vision is to be the trusted partner supporting you on your journey
MMI Mission – To inspire hope, promote awareness and contribute to health and well-being by providing support to every patient, carer and healthcare professional dealing with myeloma through education, advocacy and research.
MMI Values – Our core values guide our day to day behaviours, our decisions, our actions and our relationships with patients, family members, carers and healthcare professionals. These core values preserve what is special about MMI and provide us with a compass to navigate both strategic evolution and our day to day actions.
Support Group contacts and meeting information
|Midlands Myeloma Support Group||Dochas Cancer Support Centre, Tullamoreemail@example.com
|Online meetings the last Monday of the month @19.00 contact firstname.lastname@example.org to register.
Next meeting via Zoom Monday May 31st @ 7 pm
|Mid-West Myeloma Support Group – Limerick||Mid-West Cancer, Support Centre, University Hospital, Dooradoyleemail@example.com
Nicky 089 4830576
|Dublin Arc Myeloma Peer Support Group||Arc House 559, South Circular Road, Rialtofirstname.lastname@example.org
Ann 086 8117147
Wed June 16th @ 12.30
|Multiple Myeloma Support Group North West||Sligo Cancer Support Centre.||mmspnorthwest@multiple
Sligo Cancer Support Centre
|Zoom meetings the last Monday of each month|
|Drogheda Multiple Myeloma Support Group||Gary Kelly Cancer Support Centre||Phone:041- 9805100
|Meetings the first Wednesday of the month @2pm|
|Wexford Multiple Myeloma Support Group||Hope Cancer Support Centre||Mary O Neill email
|Zoom Meetings the first Friday (next:June 4th) of each month @10.30am|
|Cork Multiple Myeloma Support Group||TBC||Dermot @086 0611440||This is a new group currently being set up.|
Support Groups allow people to talk about their experiences and feelings with others living with cancer. Being part of a group often creates a sense of belonging that helps each person feel more less alone and provide a sense of control.Meeting formats vary from group to group.
All are facilitator led and many include the support of a Health Care Provider. Confidentiality is very important.
Group activities may include guest speakers, social outings, fundraising activities and there is usually a cup of tea and an opportunity to chat.
Due to current Covid 19 restrictions face to face meetings are postponed. Virtual meeting via Zoom are taking place or being considered by some groups.
Please use the contact information above to get in touch with your nearest group if you would like to know more or attend a support group meeting.
Dr Niamh Keane (Consultant Haematologist Galway University Hospital). Presentation MMI 2020Dr Niamh Keane
Ger Walpole (Advanced Nurse Practitioner, Sligo University Hospital) presents during Multiple Myeloma Information Day 2020Ger Walpole
Karen Munhall (Clinical Nurse Specialist, Haematology, Galway University Hospital) presents during Multiple Myeloma Information Day 2020Karen Munhall
Miriam Flatley (Senior Physiotherapist, Galway University Hospital)Miriam Flatley
Sorcha Connellan (Senior Clinical Psychologist,University Hospital Limerick) presents during Multiple Myeloma Ireland Information Day 2020Sorcha Connellan
Jess Walsh presentation for MMI Information Day 2019.Jess Walsh
Liz Higgins presentation for MMI Information Day 2019Liz Higgins
Presentation from Dr Patricia O’ Regan during MMI Information Day 2019Dr Patricia O’ Regan
All donations we receive go directly to providing support services and information for those affected by multiple myeloma.
Thanks to the support of people like you we can continue to provide this service free of charge to patients & their families.
If you wish to raise funds in aid of MMI please visit our just giving page