|May 2021||Living with Multiple Myeloma. –Managing side effects of Multiple Myeloma treatment.||
In this podcast, Theresa Meenaghan an Advanced Nurse Practitioner in Haematology, discusses the importance of early recognition and early intervention of treatment side effects. By raising the red flag early she explains we can maintain patients on treatment longer and get the best results. Theresa highlights how newer multiple myeloma treatments are less associated with the traditional side effects of chemotherapy, but have their own unique side effect profile. Theresa outlines very clearly the effects of treatment on the ‘blood factory’, kidneys, bones and nerves. Theresa also provides important tips on how patients can manage common side effects of steroids, bone medication as well as managing symptoms including fatigue and peripheral neuropathy. Finally, Theresa highlights the importance of not suffering in silence, healthcare professionals are there to help you manage any side effects, don’t be afraid to ask no matter how trivial or embarrassing it may be for you, our aim is to keep you on treatment with the minimum side effects for as long as they are effective. “Cancer is only one chapter in your life it’s not the whole story”. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.
|Apr 2021||Living with Multiple Myeloma. – Understanding Smouldering Multiple Myeloma||
In this podcast, Dr Gerard Crotty, Consultant Hematologist explains Monoclonal Gammapathy of Undermined Significance (MGUS) a non-cancerous condition of the plasma cells and the slow growing cancerous process or early form of myeloma, Smouldering Multiple Myeloma. Dr Crotty explains how treatment outside a clinical trial is not indicated in patients with either condition, however close monitoring is required. For patients living with MGUS only a small no of patients will progress to Multiple Myeloma and will require treatment. For patients with Smouldering Multiple Myeloma abnormal cells can be detected in the bone marrow and an abnormal protein can be detected in the blood or urine but patients have none of the typical symptoms of active disease and monitoring regularly for signs that may indicate progression to active disease is the mainstay of management. Understanding MGUS or SMM can be challenging for patients, Dr Crotty highlights the key symptoms patients need to report to their treating team. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.
|Apr 2021||Living with Multiple Myeloma. – Managing the “Not Knowing”- Finding our power||
In this podcast, Joanna Sweeney a systemic family therapist, explores the impact and challenge of “Not Knowing” following a diagnosis of Multiple Myeloma. “Not knowing” what MM is, what it means for me, for my family, not knowing how to cope and make sense of all the changes. Joanna discusses understanding loss following a diagnosis and finding empowerment. She outlines the importance of building resilience, finding inner strengths, meaning and purpose in the patient and family unit. She also describes how emotional regulation and family therapy strengthens family resilience to cope with adversity and perhaps even grow from it together. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.
|Apr 2021||Managing infection in Multiple Myeloma and the role of vaccinations including Covid 19 vaccination||
In this short episode Prof Paul Browne, Professor of Haematology at Trinity College, Dublin, outlines Important information on managing infection in Multiple Myeloma and the role of vaccinations including Covid 19 vaccination Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.
With the help of “Just Giving” Platform – MMI offers you the opportunity to fundraise on behalf of us. This automated platform puts you in control and allows to setup multiple types of events to raise funds on our behalf.
MMI Vision – MMI recognise everyone’s experience of myeloma is unique – our vision is to be the trusted partner supporting you on your journey
MMI Mission – To inspire hope, promote awareness and contribute to health and well-being by providing support to every patient, carer and healthcare professional dealing with myeloma through education, advocacy and research.
MMI Values – Our core values guide our day to day behaviours, our decisions, our actions and our relationships with patients, family members, carers and healthcare professionals. These core values preserve what is special about MMI and provide us with a compass to navigate both strategic evolution and our day to day actions.
Support Group contacts and meeting information
|Midlands Myeloma Support Group||Dochas Cancer Support Centre, Tullamoreemail@example.com
|Online meetings the last Monday of the month @19.00 contact firstname.lastname@example.org to register.
Next meeting via Zoom Monday May May 31st @ 7 pm
|Mid-West Myeloma Support Group – Limerick||Mid-West Cancer, Support Centre, University Hospital, Dooradoyleemail@example.com
Nicky 089 4830576
|Next Zoom meeting on Thursday May 20th @7 pm|
|Dublin Arc Myeloma Peer Support Group||Arc House 559, South Circular Road, Rialtofirstname.lastname@example.org
Ann 086 8117147
|Next meeting Wed May 26th @1pm|
|Multiple Myeloma Support Group North West||Sligo Cancer Support Centre.||mmspnorthwest@multiple
Sligo Cancer Support Centre
|Zoom meetings the last Monday of each month|
|Drogheda Multiple Myeloma Support Group||Gary Kelly Cancer Support Centre||Phone:041- 9805100
|Meetings the first Wednesday of the month @2pm|
|Wexford Multiple Myeloma Support Group||Hope Cancer Support Centre||Mary O Neill email
|Zoom Meetings the first Friday of each month @10.30am
Next meeting Fri May 17th @10.30
|Cork Multiple Myeloma Support Group||TBC||Dermot @086 0611440||This is a new group currently being set up.|
Support Groups allow people to talk about their experiences and feelings with others living with cancer. Being part of a group often creates a sense of belonging that helps each person feel more less alone and provide a sense of control.Meeting formats vary from group to group.
All are facilitator led and many include the support of a Health Care Provider. Confidentiality is very important.
Group activities may include guest speakers, social outings, fundraising activities and there is usually a cup of tea and an opportunity to chat.
Due to current Covid 19 restrictions face to face meetings are postponed. Virtual meeting via Zoom are taking place or being considered by some groups.
Please use the contact information above to get in touch with your nearest group if you would like to know more or attend a support group meeting.
Dr Niamh Keane (Consultant Haematologist Galway University Hospital). Presentation MMI 2020Dr Niamh Keane
Ger Walpole (Advanced Nurse Practitioner, Sligo University Hospital) presents during Multiple Myeloma Information Day 2020Ger Walpole
Karen Munhall (Clinical Nurse Specialist, Haematology, Galway University Hospital) presents during Multiple Myeloma Information Day 2020Karen Munhall
Miriam Flatley (Senior Physiotherapist, Galway University Hospital)Miriam Flatley
Sorcha Connellan (Senior Clinical Psychologist,University Hospital Limerick) presents during Multiple Myeloma Ireland Information Day 2020Sorcha Connellan
Jess Walsh presentation for MMI Information Day 2019.Jess Walsh
Liz Higgins presentation for MMI Information Day 2019Liz Higgins
Presentation from Dr Patricia O’ Regan during MMI Information Day 2019Dr Patricia O’ Regan
All donations we receive go directly to providing support services and information for those affected by multiple myeloma.
Thanks to the support of people like you we can continue to provide this service free of charge to patients & their families.
If you wish to raise funds in aid of MMI please visit our just giving page