I am newly diagnosed

I am newly diagnosed

A diagnosis of myeloma can affect everyone differently. To begin with, most people have not heard of myeloma before receiving their diagnosis. This can make an already difficult situation all the more confusing and scary.

Being diagnosed with cancer can be a huge shock, even if your doctors have prepared you for this possibility. Patients and their families can feel overwhelmed, numb and can also experience a great deal of fear, anger and frustration. For other patients it comes as a relief that they finally have an answer to why they have felt so poorly for so long. All these feelings are common and are a natural part of coming to terms with a diagnosis.

There are several immediate questions you may have. The following resources and services may help to support you in the first few weeks and months, and beyond.

• Patient information pack: Which you receive when first diagnosed with multiple myeloma. The pack focuses on what you need to know following your diagnosis and provides some practical tips for the weeks and months ahead. Your family members and friends may also find it useful to read.
• Clinical Nurse Specialists: are specialised nurses trained to provide support to patients and their families from the time of diagnosis and through out there treatment journey
• Psychologist: Are available in some hospitals and provide psychological care to help you cope during your treatment journey
• Social worker: Can provide support and advice on benefits and entitlements and can help to link you with “Care to drive “ a facility free to some patients who have transport difficulties
• There are many information booklets such as “understanding Myeloma” provided by the Irish cancer society which provide information on treatment, physiscal, psychological and social aspect of Multiple Myeloma.