MMI Podcast Player

Date Title Summary
Jun 2021
00.00.00
Living with Multiple Myeloma – Diet and Multiple myeloma

In her engaging conversation with Maire Treasa, Ruth Kilcawley Senior Nutritional Support Dietitian at University College Hospital, Galway describes the impact of what we eat on our physical health. Ruth outlines the role of good diet and nutrition in managing cancer, reducing infections and improving Multiple Myeloma patients quality of life. Ruth stresses the importance of maintaining strength whilst undergoing treatment. She shares advice on how to balance and manage food intake. Ruth explains the importance of food variety, mixed food colours and choosing safe foods to maximise nutrition in cancer and in living with multiple myeloma. Ruth also outlines the role of the dietitian in assessment of patients nutritional status and explains the role of dietary counselling techniques to address some of the issues Multiple Myeloma patients experience during their treatment. She provides excellent tips and advice on how to overcome challenges with taste and smell which will assist patients better tolerate treatment. She emphasises how eating regularly, fuels the body. In addition, she discusses the role of nutritional supplements and cautions on the risk of overuse of supplements. Moreover, she highlights the importance of getting the balance right, we all deserve the occasional treats once in moderation! Finally, Ruth provides advice on managing sources of information and where to seek evidence based advice on a balanced, nutritional, safe diet for cancer patients. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

May 2021
00.00.00
Living with relapsed/refractory Multiple Myeloma

In this podcast, Dr Denis O’Keeffe, Consultant Hematologist explains that Multiple Myeloma will in the majority of patients come back, however today many options for treating and controlling the relapsed/refractory disease exists and patients survival has greatly improved. Dr O’Keeffe is keen to point out patients cannot stop Multiple Myeloma from coming back but it is important to maintain a healthy lifestyle. Dr O’Keeffe advises early recognition of the disease relapse is possible due to close monitoring and before the disease can cause damage. Not all patients require treatment at relapse and the decision to treat or not is individualized and made in partnership with patients. The decision to treat is based on the patients individual disease, age, physical and mental health and the additional challenge of Covid risk. Dr O Keeffe highlights that at relapse patients are better equipped to cope and that through the difficult times there is great hope. Treatment options are increasing all the time moving towards the possibility of cure. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

May 2021
00.00.00
Living with Multiple Myeloma- Living with relapsed Multiple Myeloma- Ann’s patient journey

In this podcast, Ann shares her personal experience of living with Multiple Myeloma for over 5 years. Although, her multiple myeloma has relapsed more than once and requires ongoing treatment, she is living well and is hopeful for the future.   Ann’ s engaging conversation with Maire Tresa  provides advice on the importance of taking control of your life, being active and surrounding yourself with supportive people when coping with this relapsing, remitting cancer. She describes how learning to adjust her mindset and adapting her activities has helped her learn to live with relapsed disease.   Ann outlines how being more self aware and drawing on her inner reserves has helped her overcome the fear and disappointment of her Multiple Myeloma relapse and subsequent treatment.    Ann describes honestly how she has adapted to life from ‘living from blood test to blood test’ to learning to live and manage her disease both physically and emotionally. Throughout this podcast her positive attitude and drive is moving and inspiring.   Ann shares important advice for patients living with Multiple  myeloma, including staying informed, being aware of your limitations, seeking support for symptoms or side effects  adjusting activities and setting goals.     Ann highlights the importance of support groups for sharing advice and information. In addition she encourages others through her personal experience to savour the small and simple things in life and to remain hopeful for the future.    Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

May 2021
00.00.00
An essential guide to Autologous stem cell transplantation (ASCT) in Multiple Myeloma

In this podcast, Nurse Liz Higgins, Transplant Co-Ordinator at St James Hospital, Dublin provides a detailed account of the autologous stem cell transplant patient pathway. Liz explains the role of stem cells, how stem cells are harvested and later given back to a patient following high dose chemotherapy.  Although, not curative, ASCT aims to treat Multiple Myeloma, prolong disease control and improve overall survival. Liz summaries the eligibility criteria and assessment process required prior to undergoing a ASCT. Liz clearly outlines the role of the multidisciplinary team in supporting patients through the transplant journey. This treatment is associated with many side effects however these can be very well managed. Reporting symptoms early is important. Finally Liz, clearly outlines the patients recovery period following a ASCT. This is an essential guide for patients, families and carers where ASCT is considered as part of their Multiple Myeloma treatment plan. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

May 2021
00.00.00
Living with Multiple Myeloma. –Managing side effects of Multiple Myeloma treatment.

In this podcast, Theresa Meenaghan an Advanced Nurse Practitioner in Haematology, discusses the importance of early recognition and early intervention of treatment side effects. By raising the red flag early she explains we can maintain patients on treatment longer and get the best results. Theresa highlights how newer multiple myeloma treatments are less associated with the traditional side effects of chemotherapy, but have their own unique side effect profile. Theresa outlines very clearly the effects of treatment on the ‘blood factory’, kidneys, bones and nerves. Theresa also provides important tips on how patients can manage common side effects of steroids, bone medication as well as managing symptoms including fatigue and peripheral neuropathy. Finally, Theresa highlights the importance of not suffering in silence, healthcare professionals are there to help you manage any side effects, don’t be afraid to ask no matter how trivial or embarrassing it may be for you, our aim is to keep you on treatment with the minimum side effects for as long as they are effective. “Cancer is only one chapter in your life it’s not the whole story”. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

Apr 2021
00.00.00
Living with Multiple Myeloma. – Understanding Smouldering Multiple Myeloma

In this podcast, Dr Gerard Crotty, Consultant Hematologist explains Monoclonal Gammapathy of Undermined Significance (MGUS) a non-cancerous condition of the plasma cells and the slow growing cancerous process or early form of myeloma, Smouldering Multiple Myeloma. Dr Crotty explains how treatment outside a clinical trial is not indicated in patients with either condition, however close monitoring is required. For patients living with MGUS only a small no of patients will progress to Multiple Myeloma and will require treatment. For patients with Smouldering Multiple Myeloma abnormal cells can be detected in the bone marrow and an abnormal protein can be detected in the blood or urine but patients have none of the typical symptoms of active disease and monitoring regularly for signs that may indicate progression to active disease is the mainstay of management. Understanding MGUS or SMM can be challenging for patients, Dr Crotty highlights the key symptoms patients need to report to their treating team. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

Apr 2021
00.00.00
Living with Multiple Myeloma. – Managing the “Not Knowing”- Finding our power

In this podcast, Joanna Sweeney a systemic family therapist, explores the impact and challenge of “Not Knowing” following a diagnosis of Multiple Myeloma. “Not knowing” what MM is, what it means for me, for my family, not knowing how to cope and make sense of all the changes. Joanna discusses understanding loss following a diagnosis and finding empowerment. She outlines the importance of building resilience, finding inner strengths, meaning and purpose in the patient and family unit. She also describes how emotional regulation and family therapy strengthens family resilience to cope with adversity and perhaps even grow from it together. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

Apr 2021
00.00.00
Managing infection in Multiple Myeloma and the role of vaccinations including Covid 19 vaccination

In this short episode Prof Paul Browne, Professor of Haematology at Trinity College, Dublin, outlines Important information on managing infection in Multiple Myeloma and the role of vaccinations including Covid 19 vaccination Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

Mar 2021
00.00.00
Living with Multiple Myeloma- Caroline's personal patient experience

In this podcast, Caroline Devery shares her inspiring personal journey from mild symptoms of a ‘painful swollen leg’ to a diagnosis of Multiple Myeloma. She gives an open an honest account of her treatment plan from initial treatment, through Stem Cell transplantation to maintenance therapy, all whilst planning her wedding! Her story provides great insight, information and support for all patients living with Multiple Myeloma and their families. Multiple Myeloma Ireland: Website Facebook Twitter

Mar 2021
00.00.00
Supportive management and research development in Multiple Myeloma

In Part 2 of a two part podcast, Prof. Paul Browne continues his conversation on managing Multiple Myeloma. In this episode Prof Browne outlines the importance of supportive treatments and the role of patient in managing their Multiple Myeloma . He also provides an update on the latest research and developments in Multiple myeloma. Prof Paul Browne is a Professor of Haematology at Trinity College, Dublin and Consultant Haematologist and Director of the National Adult Stem Cell Transplant Programme at St James Hospital, Dublin. He is an expert in Multiple Myeloma. Multiple Myeloma Ireland: Website Facebook Twitter  

Mar 2021
00.00.00
Overview of the diagnosis and management of Multiple Myeloma

In this podcast, part 1 of a 2 part series, Prof. Paul Browne outlines the pathway to a diagnosis of Multiple Myeloma. He provides details on the treatment approach to control and manage Multiple Myeloma, all from an Irish perspective. An excerpt specific to Infections and vaccination management in Multiple Myeloma is provided in part 3. Prof Paul Browne is a Professor of Haematology at Trinity College, Dublin and Consultant Haematologist and director of the National Adult Stem Cell Transplant Programme  at St James Hospital, Dublin. He is an expert in Multiple Myeloma Multiple Myeloma Ireland: Website Facebook Twitter

Need more information from us?

Stay Updated

Speak confidentially with our support services team for information and support.

Call +353 86 022 6992 or email info@multiplemyelomaireland.org

Together we can help patients & carers of multiple myeloma.

2020 © All rights reserved of Multiple Myeloma Ireland | Multiple Myeloma Patient & Carer Support
Multiple Myeloma Ireland c/o Cancer Centre, Haem/Onc Day Unit, Limerick University Hospital.
Loading please wait