MMI Presentations & LinksMMI Resources

MMI Presentations, Links & other useful Multiple Myeloma Resources

Multiple Myeloma ResourcesMMI Podcast Series

Date Title Summary
May 2021
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Living with Multiple Myeloma. –Managing side effects of Multiple Myeloma treatment.

In this podcast, Theresa Meenaghan an Advanced Nurse Practitioner in Haematology, discusses the importance of early recognition and early intervention of treatment side effects. By raising the red flag early she explains we can maintain patients on treatment longer and get the best results. Theresa highlights how newer multiple myeloma treatments are less associated with the traditional side effects of chemotherapy, but have their own unique side effect profile. Theresa outlines very clearly the effects of treatment on the ‘blood factory’, kidneys, bones and nerves. Theresa also provides important tips on how patients can manage common side effects of steroids, bone medication as well as managing symptoms including fatigue and peripheral neuropathy. Finally, Theresa highlights the importance of not suffering in silence, healthcare professionals are there to help you manage any side effects, don’t be afraid to ask no matter how trivial or embarrassing it may be for you, our aim is to keep you on treatment with the minimum side effects for as long as they are effective. “Cancer is only one chapter in your life it’s not the whole story”. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

Apr 2021
00.00.00
Living with Multiple Myeloma. – Understanding Smouldering Multiple Myeloma

In this podcast, Dr Gerard Crotty, Consultant Hematologist explains Monoclonal Gammapathy of Undermined Significance (MGUS) a non-cancerous condition of the plasma cells and the slow growing cancerous process or early form of myeloma, Smouldering Multiple Myeloma. Dr Crotty explains how treatment outside a clinical trial is not indicated in patients with either condition, however close monitoring is required. For patients living with MGUS only a small no of patients will progress to Multiple Myeloma and will require treatment. For patients with Smouldering Multiple Myeloma abnormal cells can be detected in the bone marrow and an abnormal protein can be detected in the blood or urine but patients have none of the typical symptoms of active disease and monitoring regularly for signs that may indicate progression to active disease is the mainstay of management. Understanding MGUS or SMM can be challenging for patients, Dr Crotty highlights the key symptoms patients need to report to their treating team. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

Apr 2021
00.00.00
Living with Multiple Myeloma. – Managing the “Not Knowing”- Finding our power

In this podcast, Joanna Sweeney a systemic family therapist, explores the impact and challenge of “Not Knowing” following a diagnosis of Multiple Myeloma. “Not knowing” what MM is, what it means for me, for my family, not knowing how to cope and make sense of all the changes. Joanna discusses understanding loss following a diagnosis and finding empowerment. She outlines the importance of building resilience, finding inner strengths, meaning and purpose in the patient and family unit. She also describes how emotional regulation and family therapy strengthens family resilience to cope with adversity and perhaps even grow from it together. Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

Apr 2021
00.00.00
Managing infection in Multiple Myeloma and the role of vaccinations including Covid 19 vaccination

In this short episode Prof Paul Browne, Professor of Haematology at Trinity College, Dublin, outlines Important information on managing infection in Multiple Myeloma and the role of vaccinations including Covid 19 vaccination Multiple Myeloma Ireland: Website Facebook Twitter This podcast has been produced by Fuzion Communications.

Multiple Myeloma ResourcesMMI Medical Articles

Year Title Excerpt Link
July 2020 One of the Lucky Ones – MMI Pat Gately interview

MMI Patient and Family Day Report 2019: Living longer with multiple myeloma – Danielle Barron speaks to a patient who has benefitted from the daratumumab combination treatment

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July 2020 Covid19: Advice to multiple myeloma patients

What do we know about the virus?- Danielle Barron Reports

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October 2019 Living longer with multiple myeloma

What do we know about the virus?- Danielle Barron Reports

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September 2019 MM Stem cell transplant – What happens in a stem cell transplant?

Danielle Barron reports Autologous stem cell transplantation (ASCT) is a common treatment for patients with multiple myeloma. It involves the removal or “harvesting” of stem cells from the patient’s blood. These are then stored (cryopreserved) while the patient receives high dose chemotherapy, after which the stem cells are returned to the patient. It remains the […]

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October 2018 The rapid evolution of multiple myeloma management

Eminent haematology specialist Dr Enrique Ocio is a consultant physician in the haematology department at the University Hospital of Salamanca and clinical researcher at the Cancer Research Centre of the University of Salamanca. He spoke to Danielle Barron about how multiple myeloma treatment is evolving We have advanced a lot in multiple myeloma in the […]

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May 2018 Report: Amyloidosis Q&A

MMI Amyloidosis -April 2018 Dr John Quinn, consultant haematologist at Beaumont Hospital, Dublin, recently answered some frequently asked questions about amyloidosis, why it can be confused with multiple myeloma, and how it may affect some people with multiple myeloma What is amyloidosis? Amyloidosis is actually the name given to a group of diseases, the most […]

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January 2018 The new normal – a carer’s perspective

My husband was diagnosed with multiple myeloma over 15 years ago, in 2002. He was turning 55, which was very young. It changes your life. I was very angry and very upset when I found out. Even still, I can be angry about it, but I have to put it to one side, because it […]

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